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  • Mastocytosis (age-23) - Mayo Clinic Connect
    About a month and a half later, at my annual check-up, upon request, my PCP felt my spleen, and said it was palpitating I got a stat ultrasound which showed a moderately enlarged spleen measuring 14 4cm So if the splenomegaly is from the Polycythemia, I wonder why the RBC deflated a bit! (sarcasm)
  • What relieves pain from an enlarged spleen in leukemia?
    A couple of days before the procedure took place my Doctor decided to try a drug called VONJO It is taken orally Within two weeks of starting the Vonjo my pain degreased significantly Within a month my spleen was no longer enlarged, the pain was totally gone and I was back to eating a full meal
  • Low hemoglobin and enlarged liver and spleen - Mayo Clinic Connect
    Your story mirrors mine I went through the exact situation for a long time Many Blood transfusions I was taking both Aranesp and Reblozyl injections to boost my Red cell count When I started taking VONJO, my spleen shrank very quickly and that alone helped me to feel better The they started me on Dacogen infusions
  • Elevated platelets and enlarged spleen | Mayo Clinic Connect
    An enlarged spleen is characterized as one that is larger than 12 cm (approximately 5 inches) in length or over 400 grams (approximately 14 ounces) in weight Splenomegaly usually occurs as a result of secondary causes rather than primary diseases of the spleen and is considered a rare condition, but can affect anyone
  • Pancreas and spleen removal: how is life afterwards?
    I had my pancreas, gallbladder, and spleen removed 3 months ago Initial recovery in the hospital was tough Lots of extra fluid weight, drains, pain, GI issues Now that I'm home and it's been 3 months, the main things are diarrhea and adjusting to being an insulin dependent diabetic I'm 41 years old and was in good shape prior to surgery
  • Splenic Cyst - Mayo Clinic Connect
    If a cyst was resolving on its own, it should have resolved within months not years Along with my splenic cyst I also have an enlarged spleen that is just literally under 11 inches And according to the same radiologist my spleen is enlarged but my liver is Yet another discrepancy on his MRI report
  • CLL and Managing an Enlarged Spleen - Mayo Clinic Connect
    Hello all I have CLL and thus had a very enlarged spleen because of it The average spleen is 12-14 CM’s in length and mine had grown to over 21 CM’s in length This was a very dangerous situation for me as I continued to be active in sports, more specifically cycling and hockey Even though I’m 62 yrs of age, I really give er Lolol
  • Whats the danger in longterm use of filgrastim (Neupogen)?
    My husband is being treated with it to improve white blood cell production for his MDS neutropenia We are concerned about enlarged spleen and increased AML risk among other concerns He has developed severe bone pain, some headaches, easy bruising even before Filgrastrim, and he’s an easy bleeder
  • Have ET: What if spleen is enlarged? | Mayo Clinic Connect
    I have ET, 69 years old, experiencing fatigue and headaches First hematologist recommended Hydroxyurea for counts hovering around 500 Second MPN specialist prescribed 2 low-dose aspirin only for the time being Just had an ultrasound for possible enlarged spleen My question is: what if spleen is enlarged? What would the ramifications be?
  • Polycythemia causing enlarged spleen | Mayo Clinic Connect
    My doctor (oncologist) had me have an ultrasound to check the size of my spleen and it showed it to be enlarged at 18cm with normal being about 12cm I was diagnosed with PV three years ago and have been on hydroxyurea with periodic phlebotomies since then My red and white blood cells and platelet #’s are consistently above normal





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