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  • National Organization for Rare Disorders | NORD
    It is the foundation upon which NORD was built NORD works with partners in the patient community, government, academia, and industry who share the ultimate goal of identifying, treating, and curing rare diseases In addition to the partnerships listed below, NORD works with many national partners to achieve its advocacy goals
  • Financial Assistance For Patients With Rare Diseases | NORD
    NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year With the respite program, I was able to select a family friend who I trusted, who was already adequately trained to handle my daughter’s needs, and I could have her provide respite whenever I needed it
  • About Us - National Organization for Rare Disorders
    NORD was founded after the passage of the Orphan Drug Act of 1983 (ODA) to formalize the coalition of patient advocacy groups that were instrumental in passing that landmark law Since then, NORD has been a national steward and a steadfast partner helping those who battle and care for rare disease feel seen, heard, supported, and connected
  • List of Rare Diseases | A-Z Database | NORD
    What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies and it is an ongoing project made possible by a close collaboration with MONDO, Orphanet, and Online Mendelian Inheritance in Man (OMIM)
  • Centers of Excellence - National Organization for Rare Disorders
    NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being Our belief is that the NORD Rare Disease Centers of Excellence program is the next big stride forward for rare disease patients and care, to improve health equity and create critical new
  • NORD Rare Disease Scientific Symposium
    Join a community of researchers, clinicians, industry leaders, and others at the NORD® Rare Disease Scientific Symposium to share knowledge, exchange ideas, and forge partnerships that advance progress for patients across all rare diseases
  • NORD Rare Disease Grant Program - National Organization for Rare Disorders
    By providing “Your Content”, you grant NORD a license to read, use, reproduce, adapt, modify, publish, translate, and distribute the content in our marketing materials and to all media “Your Content” must be your own and must not invade any third‐party’s rights
  • Living with a Rare Disease | NORD
    By providing “Your Content”, you grant NORD a license to read, use, reproduce, adapt, modify, publish, translate, and distribute the content in our marketing materials and to all media “Your Content” must be your own and must not invade any third‐party’s rights
  • Dercums Disease - Lipoma Symptoms, Causes, Treatment - NORD
    By providing “Your Content”, you grant NORD a license to read, use, reproduce, adapt, modify, publish, translate, and distribute the content in our marketing materials and to all media “Your Content” must be your own and must not invade any third‐party’s rights
  • Rare Disease Facts and Statistics | NORD
    NORD’s Rare Disease Video Library provides brief introductions to rare disease topics for patients and caregivers NORD collaborates with medical experts, patient organizations and videographers to develop the videos, which are made possible by individual donations, educational grants, and corporate sponsorships





中文字典-英文字典  2005-2009