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  • Mastocytosis (age-23) - Mayo Clinic Connect
    About a month and a half later, at my annual check-up, upon request, my PCP felt my spleen, and said it was palpitating I got a stat ultrasound which showed a moderately enlarged spleen measuring 14 4cm So if the splenomegaly is from the Polycythemia, I wonder why the RBC deflated a bit! (sarcasm)
  • Splenic Cyst - Mayo Clinic Connect
    If a cyst was resolving on its own, it should have resolved within months not years Along with my splenic cyst I also have an enlarged spleen that is just literally under 11 inches And according to the same radiologist my spleen is enlarged but my liver is Yet another discrepancy on his MRI report
  • What relieves pain from an enlarged spleen in leukemia?
    A couple of days before the procedure took place my Doctor decided to try a drug called VONJO It is taken orally Within two weeks of starting the Vonjo my pain degreased significantly Within a month my spleen was no longer enlarged, the pain was totally gone and I was back to eating a full meal
  • Low hemoglobin and enlarged liver and spleen - Mayo Clinic Connect
    Your story mirrors mine I went through the exact situation for a long time Many Blood transfusions I was taking both Aranesp and Reblozyl injections to boost my Red cell count When I started taking VONJO, my spleen shrank very quickly and that alone helped me to feel better The they started me on Dacogen infusions
  • Elevated platelets and enlarged spleen | Mayo Clinic Connect
    An enlarged spleen is characterized as one that is larger than 12 cm (approximately 5 inches) in length or over 400 grams (approximately 14 ounces) in weight Splenomegaly usually occurs as a result of secondary causes rather than primary diseases of the spleen and is considered a rare condition, but can affect anyone
  • Whats the danger in longterm use of filgrastim (Neupogen)?
    My husband is being treated with it to improve white blood cell production for his MDS neutropenia We are concerned about enlarged spleen and increased AML risk among other concerns He has developed severe bone pain, some headaches, easy bruising even before Filgrastrim, and he’s an easy bleeder
  • Pancreas and spleen removal: how is life afterwards?
    I had my pancreas, gallbladder, and spleen removed 3 months ago Initial recovery in the hospital was tough Lots of extra fluid weight, drains, pain, GI issues Now that I'm home and it's been 3 months, the main things are diarrhea and adjusting to being an insulin dependent diabetic I'm 41 years old and was in good shape prior to surgery
  • How do you adjust to life after a splenectomy? (Diet + Avoiding Fever)
    I am sorry to hear that your mother is going through all of this I had a similar surgery as a result of a total pancreatectomy about six years ago I had similar concerns and my doctors have reassured me that life without a spleen is not *that* much more risky than with one provided you receive the pneumonia vaccines as a preventative measure
  • Polycythemia causing enlarged spleen | Mayo Clinic Connect
    My doctor (oncologist) had me have an ultrasound to check the size of my spleen and it showed it to be enlarged at 18cm with normal being about 12cm I was diagnosed with PV three years ago and have been on hydroxyurea with periodic phlebotomies since then My red and white blood cells and platelet #’s are consistently above normal
  • Whats recovery after distal pancreatectomy and splenectomy like?
    Can anyone give me information on how their recovery was after distal pancreatectomy and splenectomy? After 2 years of MRIs every 6 months and watching an MNC slowly but steadily grow, my doctor said that I should have this procedure





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